Greensboro Workshop for Alexander Technique Teachers and Trainees:
Adapting Alexander Technique for People Living with Parkinson's and their Care Partners
The main objective of this course will be to learn about the particular needs of People Living with Parkinson's (PwP) and to suggest the most successful ways to apply Alexander principles when working with this population.
The training will be led by Monika Gross with distance support via video conference from Dr. Maya Katz, a movement disorder specialist at University of California San Francisco, and some other Parkinson's allied health professionals in North Carolina.
The Poise Project has a grant from the Parkinson's Foundation to deliver classes for care partners of PwP at six sites in North Carolina in 2017-2018, and we will be working to expand this program into other towns and regions. We also are working to initiate a longitudinal case study project to measure the efficacy and long term retention of AT training for PwP and their care partners.
Teachers who participate in this day of training will be trained to be part of the pool of teachers we will draw from for the case study project as well as for future class programming for PwP and care partners as new classes are created and regional expansion occurs. If you are based near one of the sites where we are delivering the care partner class over the next months, this training will provide a foundation for you to be a potential "substitute" or occasional assistant teacher for these classes as needed.
Our focus will be on how AT can help PwP develop practical skills for self-management of motor symptoms affecting balance, gait and postural tone, including falls, freezing, forward neck posture and slowed movement, as well as non-motor symptoms such as anxiety, apathy, low volume speech, swallowing, and sleep interruption.
AT can offer PwP hope and increase their confidence, independence, and overall quality of life. AT can help them chose optimal postural tone and improve their overall functioning during iADLs (instrumental activities of daily living). It can also give tremendous support and a more positive outlook to the spouses and other family members and care partners of PwP. Training their care partners at the same time helps them learn how to cue PwP when cognitive decline may be present, which is often a later stage aspect of PD.
The second half of the training day will be about the particular needs of care partners of PwP, and can be generalized to how AT can support care partners in many situations, especially when the care receivers have cognitive decline. It will focus on how to deliver AT in a way that gives practical ongoing skills for care partners to manage the physical and emotional demands of caregiving.
We are reaching out to PwP and care partners from the community who we will be inviting to attend an informal workshop session during the training day so that training day participants may be able to have the opportunity to work with them and receive their feedback.
Space is limited, so please book early!
Some of the topics we will cover:
Definition of Parkinson's and symptoms
Current research in AT for PD
Report on THE POISE PROJECT AT for PD initiative and our targeted team presence at the 4th World Parkinson Congress in Portland OR in September 2016 as well as our continued broad outreach across the US. There were 4500+ international delegates at the WPC in Portland and we want the AT community to feel well prepared to meet the demand when interest in AT is successfully generated amongst this population and more funding is in place for subsidizing programs
How traditional AT educational methodology can be adapted for this population and some best practices as recommended by AT teachers with expertise in the field
How to include care partners to support learning and increase retention of AT principles for PwP, as well as to give them self-management skills to address the serious stresses of their own circumstances
Working with middle and late stage PwP, particularly when there is cognitive decline.
Emotional and psychological considerations when working with individuals with a degenerative disease, both for participants and for teachers
The realities of financial concerns when delivering AT for PwP and a discussion of how we can work together to find future solutions to removing barriers to access
How best to talk about AT to the medical care providers, allied health professionals, and research scientists that you may come in contact with in the field of Parkinson's disease and when advocating for AT for this population
MONIKA GROSS is Executive Director of The Poise Project, a nonprofit with the mission of maintaining natural poise and continuous personal growth throughout all stages and challenges of life through the principles of Alexander technique (AT). The Poise Project is committed to removing barriers and making AT available across socio-economic groups and to those with chronic conditions. It has received a $25,000 Parkinson's Foundation 2017 Moving Day® Community Grant to deliver AT-based classes to care partners of people living with Parkinson's disease at six sites across North Carolina.
Monika had her first AT lesson in 1976 and was certified in 1985 in Lydia Yohay's (ACAT) teacher training program in NYC. She is a teaching member of the American Society for the Alexander Technique (AmSAT) and Alexander Technique International (ATI), as well as a member of the local regional AT teacher consortium Alexander Teachers of the Mountain Region (ATMR). She is also a Registered Somatic Movement Educator with the International Somatic Movement Education and Therapy Association (ISMETA). Monika holds a BFA in Drama from the North Carolina School of the Arts.
Monika is co-owner of Form Fitness & Functiona, and has a private AT practice in Asheville and in Charlotte NC. She also offers AT training via Skype or Zoom.
Phone: (USA) 1-828-254-3102 (EST)
DR. MAYA KATZ is an Assistant Professor of Neurology at the UCSF Movement Disorders and Neuromodulation Center. She specializes in the treatment of Parkinson's disease, essential tremor, dystonia and other movement disorders. Her research interests include identifying disease modification strategies and improving outcomes for patients treated with deep brain stimulation. She is also interested in developing multidisciplinary clinical approaches that incorporate palliative care principles.
Dr. Katz obtained her medical degree at Cornell University. She completed her residency in Neurology at Mount Sinai Medical Center, where she served as chief resident. She then completed her Movement Disorders Fellowship at UCSF in 2013. Dr. Katz is board certified in Neurology and is an active member of the American Academy of Neurology and the International Parkinson and Movement Disorder Society.